We had such an incredible weekend at the CureDuchenne FUTURES Conference. It was our first time attending, and there is truly something special about being in a space filled with people who just get it — no explanations needed.
Watching the boys interact and make friends was so emotional in the best way. Seeing Bennett meet other boys who move like him, think like him, and understand his world brought a tear to my eye more than once. There’s something so powerful about that kind of connection.
And beyond the friendships, there was so much hope in all the learning — hearing from therapeutic companies about what’s up and coming, the progress being made, and the future of care for our boys. What a gift it was to be part of those conversations.
We can’t thank @team_joseph enough for helping get us here, and @cureduchenne enough for creating such a meaningful weekend for us families.
We’re already looking forward to seeing everyone in San Diego next year. What an honor this weekend was. ❤️
