Bennett’s mom Sarah Rasmussen will be participating in the Indianapolis Mini Marathon this Saturday, May 2 2026. Sarah has decided to do something difficult and take on the mini marathon in honor of Bennett, who does something difficult everyday. He battles against this rare disease with courage, joy and resilience!! So come out and support Sarah and her plight to raise awareness. You can help in the fight to find a cure for Duchenne Muscular Dystrophy by donating to MDA. Sarah is taking donations: 13 dollars for 13 miles, click here and help her reach her goal of $1300.
Tag: Duchenne
Welcome
Hi, we are the Rasmussens (Hans, Sarah, Bennett Dean, Hazel Mae and Lewis James). Our son, Bennett, was diagnosed with Duchenne Muscular Dystrophy, a rare muscle-wasting disorder for which there is no known cure. It doesn’t make sense and it certainly isn’t fair that he has to face this in his lifetime.
Bennett is such a wonderful child. Diagnosed at 3 (almost 4) years old, you will always find him smiling. He loves to make people laugh and he gives the best hugs. Bennett loves to climb rocks, go to the zoo, play outside, read books, eat all the fruit, and he enjoys anything Disney-related. Most importantly, he loves his family and spending time with them more than anything else in the world. We don’t know why this chose Bennett, but unfortunately it did.
We are not sure how navigating this journey is going to look, but we do know it is going to bring a lot of medical bills, physical therapy, and other expenses as the years go on. We want to give Bennett his best chance at a full and happy life. We are praying and believing that Bennett will defy the odds, hoping for advancements in medicine as the years go on, and choosing to continue our adventurous lifestyle with a few pit stops at Children’s Hospitals along the way.
Fast forward to 2026, Bennett is now 6 and a half and doing well. Bennett has weekly Exxon skipping infusions, takes steroids daily and many natural supplements. He also participates in occupational and physical therapies. He loves his brother, sister and of course mom and dad. As well as his extended family and his stuffies. This website will serve as our families journey in the battle against this rare disease. You will find information not only on our journey but also links to important events (our annual Brave Like Bennet Walk) and dmd gear!
So stay tuned, there is more to come!
DMD with Benny D
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