Tag: exxon skipping

LA Trip

Wow, Sarah and Hans were able to fly to LA for the live premeir of The Firsts: Stories That Changed Duchenne.

Thanks to Sarepta for sponsoring the premeir and to UCLA for all the research they do for duchenne and our warriors.

The premier was held at UCLA Nimoy Theater and the link to the documentary is here

UCLA also has a whole department dedicated to research for Duchenne Muscular Dystrophy and if you would like to learn more visit http://cdmd.ucla.edu

From Sarah and Hans: it was a great weekend with everyone from the community that was able to attend. We are always grateful to be invited and to be able to attend Duchenne Awareness events.

Nationwide Check In

This week Bennett had his six month check-up at Nationwide Hospital in Columbus, OH.

The doctor was very pleased with the way Bennett’s treatment is going! The doctor commented that Bennett could/should be the poster boy for more than one of his treatments (making mom and dad’s hearts happy!)

Bennett not only receives exxon skipping medication once weekly he also takes steroids alongside another anti-inflammatory medicine. Along with those pescribed medication Bennett takes a regiment of supplements including but not limited to tumeric and CBD oil daily.

If you would like to know Bennett’s full range of medications and supplements Sarah has a post over on their Instagram account. . . . Therasmussens.vs.duchenne